Our Petition to WhiteHouse.gov & why you should sign it

Long time readers are familiar with the saga of my fiancee Tanya and her life being diagnosed with Rheumatoid Autoimmune Disease, aka Rheumatoid Arthritis (RA), which turned out to not be RA but rather a Biotinidase Deficiency. Since my server stats indicate that I have a lot of new readers I will summarize the ordeal …

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Adult Biotinidase Deficiency and you

To say that this has been an amazing week would be an understatement; I would go so far as to suggest that it has been a miraculous week. I would like you to take a look at the photo of Tanya, to the left. I took that photo this afternoon (Saturday, July 27); there is …

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Practicing medicine

Sometimes clichés are just a little too accurate; for example, to say doctors are just practicing medicine is sad but true and that is what brought about my writing of this particular article. Since I expect that there are new readers here that do not know the back story to my adventure in medicine, I …

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Celebrating Tanya’s birthday & health

Wednesday was Tanya’s birthday and since she has been feeling much better over that past couple of months, combined with the fact that she has been working pretty hard lately, we decided to take a couple days off to celebrate her birthday. We started off on Wednesday at Matsuyama Japanese Restaurant & Sushi Bar and …

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Celebrating one month pain free

Back in August I mentioned that Tanya had started using a new drug to combat the pain from her Rheumatoid Autoimmune Disease (aka RAD or RA) she has been living with since 2003. She had been using Enbrel for quite some time, but it did not seem to be doing any good, so Cimzia was …

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Living with RA: One year later

A few weeks ago several of my siblings came into town to attend a function that was honoring my dad and a few others that attend his church. One of my brothers asked me if I was going to continue writing about life with Rheumatoid Arthritis or not. Apparently he had enjoyed reading my perspective. …

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Tests, tests and more tests

When I last posted about meeting Tanya’s new rheumatologist, I mentioned that Tanya had been referred to an endocrinologist to investigate some breathing issues she has at times. Dr. Ishimori was concerned that perhaps there is more than just the Rheumatoid Autoimmune Disease (RAD/RA)at work here. Naturally, they have to schedule all tests to be …

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A visit to Dr. Mariko Ishimori

Thursday morning, Tanya and I headed out to Beverly Hills and Cedars-Sinai Medical Center to visit a new rheumatologist, Dr. Mariko Ishimori, MD. After Tanya’s last experience with Dr. Forouzesh she decided that she could not handle the stress of having a doctor that changed attitudes and commentary with each visit. The fact that he …

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Rheumatoid Autoimmune Disease, doctors and stress

It is no secret that, in general, I do not like doctors and do my best to avoid seeing them on a professional level. Since Tanya moved here I have been with her on several visits to see her rheumatologist; the experience has not done much to change my opinion of the profession. I will …

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